{"id":541,"date":"2017-07-26T13:23:07","date_gmt":"2017-07-26T13:23:07","guid":{"rendered":"http:\/\/blogs.shu.ac.uk\/hwbstaffnews\/?p=541"},"modified":"2017-07-26T13:23:07","modified_gmt":"2017-07-26T13:23:07","slug":"research-reveals-the-hidden-16000-price-tag-of-parkinsons","status":"publish","type":"post","link":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/2017\/07\/26\/research-reveals-the-hidden-16000-price-tag-of-parkinsons\/","title":{"rendered":"Research reveals the hidden \u00a316,000 price tag of Parkinson\u2019s"},"content":{"rendered":"<div class=\"col col1\">\n<p><strong>Thousands of people affected by Parkinson\u2019s are struggling with financial losses of more than \u00a316,000 every year, according to new research published today by Sheffield Hallam University and charity Parkinson\u2019s UK.<\/strong><\/p>\n<p>The\u00a0<a href=\"https:\/\/www.shu.ac.uk\/research\/specialisms\/centre-for-health-and-social-care-research\/reports\/economic-social-and-financial-cost-of-parkinsons-on-individuals-carers-and-their-families\" target=\"_blank\"><em>Cost of Parkinson\u2019s<\/em><\/a>\u00a0report shows that a household where a person is living with the condition loses around \u00a3319 per week on average (60% more than previously thought), due to a combination of reduced income and increased costs.<\/p>\n<p>Dr Anil Gumber from the Faculty of Health and Wellbeing was Principal Investigator of the report whose \u00a0findings reveal that half of those diagnosed with Parkinson\u2019s, and one third of family members, have reduced their working hours, looked for more flexible roles or given up work entirely. Overall, households affected by the condition experience a loss of income averaging \u00a310,731 per year, as a result of:<\/p>\n<ul>\n<li>People being unable to work or having to take early retirement (\u00a36,013)<\/li>\n<li>A reduction in working hours by the person affected and\/or by their carer (\u00a31,981)<\/li>\n<li>Family members providing unpaid care without financial support (\u00a31,235)<\/li>\n<li>Discontinuance of state benefits and pensions (\u00a31,502)<\/li>\n<\/ul>\n<p>This is in addition to mounting health and social care costs, which add up to an average of \u00a35,851 per household across the year and include:<\/p>\n<ul>\n<li>assistance for daily living, such as transport and personal care (\u00a32,088)<\/li>\n<li>energy costs (\u00a3572)<\/li>\n<li>healthcare related equipment and travel (\u00a31959)<\/li>\n<li>adaptations to the home (\u00a3525)<\/li>\n<\/ul>\n<p>The research comes at a time when families are already struggling to pay the bills, and shows that people affected by Parkinson\u2019s are bearing the additional financial brunt of their diagnosis.<\/p>\n<p>&nbsp;<\/p>\n<p>Currently around 127,000 people in the UK are living with Parkinson\u2019s, an incurable, degenerative neurological condition which leaves people struggling to walk, talk and sleep.<\/p>\n<p>Anna Cunningham is aged 46 and lives in Dundee. Anna was diagnosed with Parkinson\u2019s in 2013 and was quickly forced to retire as a healthcare assistant due to her symptoms.<\/p>\n<blockquote><p>&#8220;Being diagnosed with Parkinson\u2019s was a total shock. I was told I needed to retire early and it hit me like a ton of bricks.\u00a0I have a small NHS pension, which brings in about \u00a3200 a month, and my husband works part time at the hospital, so financially it was very hard straight away.\u00a0I applied for benefits, but the process took so long that for nearly a year we had hardly any money coming in. We live in a rented council house but we still had to pay full rent and council tax. We ended up falling into arrears and had to deal with a court summons. Now, I get Personal Independence Payments (PIP) and some Employment Support Allowance (ESA), but we\u2019re still trying to pay off our rent arrears, so times are very tight.I miss my job, but I couldn\u2019t work regular hours anymore.\u00a0 Now, I\u2019m training up to be a volunteer educator for Parkinson\u2019s \u2013 so I can help people understand more about the condition, what it is like to live with it and the full impact it has.&#8221; Anna Cunningham<\/p><\/blockquote>\n<\/div>\n<div class=\"col col2\">\n<p>The report also highlights a reduction in quality of life as the condition progresses. Most respondents with Parkinson\u2019s had seen a decline in their health over the previous year, with two-thirds needing help with activities inside and outside the home.<\/p>\n<p>In addition, it showed a worrying impact on wellbeing. Over 60 per cent of people with Parkinson\u2019s and 55 per cent of carers who were surveyed scored as having low life satisfaction.<\/p>\n<p>The charity is calling on Governments across England, Wales, Scotland and Northern Ireland to make changes to welfare support and increase social care investment, as well as proposing new policies and practices for employers so that people affected by Parkinson\u2019s are supported to stay in work for as long as is appropriate.<\/p>\n<blockquote><p>&#8220;People affected by Parkinson\u2019s and their informal carers, need support from the point of diagnosis to better understand the condition, and help plan how they cope in the long term.\u00a0It is important that those with the condition are supported to stay positive and make contact with organisations that provide advice, guidance and support like Parkinson\u2019s UK and we hope this study has helped to highlight the need for more to be done to support the rising number of people living with long-term health condition like Parkinson\u2019s.\u201d\u00a0Dr Anil Gumber from Sheffield Hallam University\u2019s Faculty of Health and Wellbeing<\/p><\/blockquote>\n<p><a href=\"http:\/\/www4.shu.ac.uk\/mediacentre\/research-reveals-hidden-%C2%A316000-price-tag-parkinson%E2%80%99s\" target=\"_blank\"><em>Research reveals the hidden \u00a316,000 price tag of Parkinson\u2019s<\/em> first appeared on the Sheffield Hallam University Media Centre<\/a><\/p>\n<p><strong>For more information:<\/strong>\u00a0Sarah Duce in the University press office on 0114 225 4025 or email\u00a0<a href=\"mailto:s.duce@shu.ac.uk\">s.duce@shu.ac.uk<\/a>\u00a0or for access to case studies and charity spokespersons contact, Kirsty Callingham on 020 7963 9311 or email kcallingham@parkinsons.org.uk\u00a0<span style=\"font-family: Arial, sans-serif\">\u00a0<\/span><\/p>\n<\/div>\n","protected":false},"excerpt":{"rendered":"<p>Thousands of people affected by Parkinson\u2019s are struggling with financial losses of more than \u00a316,000 every year, according to new research published today by Sheffield Hallam University and charity Parkinson\u2019s&hellip;<\/p>\n","protected":false},"author":9105,"featured_media":543,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_jetpack_memberships_contains_paid_content":false,"wds_primary_category":0,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[21],"tags":[25,28],"class_list":["post-541","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-health","tag-research"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2017\/07\/Cost-of-Parkinsons-infographic_web.jpg?fit=640%2C262&ssl=1","jetpack_sharing_enabled":true,"jetpack_shortlink":"https:\/\/wp.me\/p8KEAX-8J","jetpack-related-posts":[{"id":3759,"url":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/2019\/08\/07\/hallam-supports-revolutionary-parkinsons-care-project\/","url_meta":{"origin":541,"position":0},"title":"Hallam supports revolutionary Parkinson&#8217;s care project","author":"Mark Greene","date":"August 7, 2019","format":false,"excerpt":"\u00a0 Hallam press release Sheffield Hallam University is supporting a project that could revolutionise care for Parkinson's patients on a national scale. The project, led by the University of Plymouth and University Hospitals Plymouth NHS Trust, will focus on co-designing a new service to help Parkinson's patients, carers and healthcare\u2026","rel":"","context":"In &quot;In the Headlines&quot;","block_context":{"text":"In the Headlines","link":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/category\/news\/hwbheadlines\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2019\/08\/Parkinsons-care-project.jpg?fit=1028%2C624&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2019\/08\/Parkinsons-care-project.jpg?fit=1028%2C624&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2019\/08\/Parkinsons-care-project.jpg?fit=1028%2C624&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2019\/08\/Parkinsons-care-project.jpg?fit=1028%2C624&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":4474,"url":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/2020\/01\/23\/sheffield-microbiomics-symposium-16-april-save-the-date\/","url_meta":{"origin":541,"position":1},"title":"Sheffield Microbiomics Symposium (16 April \u2013 save the date)","author":"Mark Greene","date":"January 23, 2020","format":false,"excerpt":"SAVE THE DATE! On April 16 2020, the Department of Neuroscience will be hosting a one-day Sheffield Microbiomics Symposium to bring together local researchers investigating all aspects of the microbiome. Please register your interest via the online form. The day will have three themes: (i) new technology, skills, techniques (gene\u2026","rel":"","context":"In &quot;Events&quot;","block_context":{"text":"Events","link":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/category\/events\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2020\/01\/Microbiome-Symposium.jpg?fit=1028%2C624&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2020\/01\/Microbiome-Symposium.jpg?fit=1028%2C624&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2020\/01\/Microbiome-Symposium.jpg?fit=1028%2C624&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2020\/01\/Microbiome-Symposium.jpg?fit=1028%2C624&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":2121,"url":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/2018\/07\/02\/research-aims-to-prevent-progressive-stages-of-multiple-sclerosis\/","url_meta":{"origin":541,"position":2},"title":"Research aims to prevent progressive stages of multiple sclerosis","author":"Sarah Briscoe","date":"July 2, 2018","format":false,"excerpt":"New research which aims to identify potential treatments for progressive stages of multiple sclerosis (MS) is underway at Sheffield Hallam University. Scientists in the University's Biomolecular Sciences Research Centre (BMRC) have begun work on a new project which seeks to understand the biological processes in the brain that triggers the\u2026","rel":"","context":"In &quot;News&quot;","block_context":{"text":"News","link":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/category\/news\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/07\/MS-research-gallery2.jpg?fit=1028%2C624&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/07\/MS-research-gallery2.jpg?fit=1028%2C624&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/07\/MS-research-gallery2.jpg?fit=1028%2C624&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/07\/MS-research-gallery2.jpg?fit=1028%2C624&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":1906,"url":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/2018\/05\/18\/research-for-patient-benefit-programme-could-exercise-help-patients-with-leg-ulcers\/","url_meta":{"origin":541,"position":3},"title":"Research for Patient Benefit Programme &#8211; Could exercise help patients with leg-ulcers?","author":"Sarah Briscoe","date":"May 18, 2018","format":false,"excerpt":"A project by Dr\u00a0Markos Klonizakis, has\u00a0been featured by the Research for Patient Benefit (RfPB)\u00a0programme\u00a0for their 10th Anniversary celebration. The RfPB is a national, researcher-led programme\u00a0which supports research motivated by the day-to-day practice of health service staff that could have an impact on the health or wellbeing of patients and other\u2026","rel":"","context":"In &quot;News&quot;","block_context":{"text":"News","link":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/category\/news\/"},"img":{"alt_text":"","src":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/06\/exercise-patients-leg-ulcers-gallery.jpg?fit=1028%2C624&ssl=1&resize=350%2C200","width":350,"height":200,"srcset":"https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/06\/exercise-patients-leg-ulcers-gallery.jpg?fit=1028%2C624&ssl=1&resize=350%2C200 1x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/06\/exercise-patients-leg-ulcers-gallery.jpg?fit=1028%2C624&ssl=1&resize=525%2C300 1.5x, https:\/\/i0.wp.com\/blogs.shu.ac.uk\/hwbstaffnews\/files\/2018\/06\/exercise-patients-leg-ulcers-gallery.jpg?fit=1028%2C624&ssl=1&resize=700%2C400 2x"},"classes":[]},{"id":3122,"url":"https:\/\/blogs.shu.ac.uk\/hwbstaffnews\/2019\/03\/05\/great-ormond-street-grant-for-hallam-project\/","url_meta":{"origin":541,"position":4},"title":"Great Ormond Street grant for Hallam project","author":"Mark Greene","date":"March 5, 2019","format":false,"excerpt":"SHU press release Sheffield Hallam University\u2019s Dr Susan Campbell has been awarded a grant of more than \u00a3189,000 from Great Ormond Street Hospital Children\u2019s Charity, and Sparks, the children\u2019s medical research charity, to fund research into the advancement of treatment of Vanishing White Matter Disease (VWMD). 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